What Prematurity means to me this World Prematurity Day

Today is World Prematurity Day; the day that the reality of prematurity may just enter into the consciousness of those who haven’t been affected by the harsh realities of prematurity. Approximately 60,000 babies are born prematurely in the UK every year – roughly 1 in 11 of births. Around the country, supporters of our little fighters will be taking part in Little Lights Walks to raise awareness and crucial funds for Bliss. Last year I was one of those supporters and even made it into our local paper. This year I’m a busy mum working full-time so I’ll be flying the flag for World Prematurity Day through social media – and I’m delighted to learn that Pampers is again supporting our babies and our NICUs through a generous fundraising campaign. Joining in on a Bliss campaign, Pampers will donate £1 to Bliss for every post shared today on social media with the hashtag #PrematurityIs and by also tagging Pampers_UK on Twitter.

So what is the reality of prematurity? The answer will of course differ for every parent. But I’d like to reflect on my perceptions of prematurity this World Prematurity Day:

#PrematurityIs losing your parental control. You don’t get to choose when you hold your baby – you’re lucky if you get to hold your baby on the same day that they’re born. Planned to have that uninterrupted ‘golden hour’ after the birth? Skin to skin and immediate breastfeeding? No chance. Your baby is whisked off to NICU before you can even get a glimpse of your newborn’s face. And when you FINALLY get to hold your baby, you’ll be sharing your moment with someone else. A nurse or two will be helping you get accustomed to all those wires. Maybe your NICU neighbour will be having a peek across the ward. No control, no choice.

#PrematurityIs the most unbearable loneliness. You’re alone on the postnatal ward, listening to the cries of healthy term babies. The catering staff pity you when they spot the empty space where the cot should be alongside your bed. The day arrives when you’re discharged from hospital and your heart breaks. I still feel teary thinking of that long walk to the car, sitting in the front seat surrounded by ‘Baby Boy’ balloons and crying uncontrollably. Although my baby had never been in our home, it felt empty. I started to build a photo wall in L’s bedroom so I could feel close to him when I expressed milk in the middle of the night. 18 months on, the photo wall remains as a tribute to his NICU journey.

#PrematurityIs nothing targeted at newborn babies being suitable for your newborn. Despite the fact that your baby has been newly born, they won’t reach the milestones and sizes labelled with their status for many weeks or months to come. I naively asked a family member to dig out the newborn outfit I’d bought a few weeks earlier for my future baby to wear home from hospital. It was the cutest little teddy bear sleepsuit with a matching hat. Maybe the hat would fit my preemie until I could buy special clothes? No chance! Even when L came home, the outfit was still gathering dust in his drawer alongside all the other newborn clothes that swamped him. The frustration of newborn clothing being unsuitable for my newborn was short-lived once I discovered the excellent range of preemie clothes available. But it was harder to find things suited to L’s developmental progress. When his peers were starting to coo and gurgle, L was still growing in his incubator. The milestones that excited me, like L finally being allowed to have his first bath, filled me with joy. I discovered at a neonatal conference that Bliss had samples of milestone cards tailored to the moments that mean so much to the parents of preemies. I used these to decorate my photo wall but it would’ve been a great help to have used these in the ‘proper’ way in hospital; something to share on social media and document the progress that L was making in the unconventional way.  To help other premature parents celebrate their baby’s development, these milestone cards will be distributed to neonatal units across the UK by Pampers and Bliss.

#PrematurityIs being obsessed with your baby encountering germs and unwanted contact with strangers – and rightly so. Babies who leave NICU are still small and still vulnerable. A micro baby attracts all sort of attention whilst out and about. For some reason, the general public think that tiny babies are fair game for unwanted contact. So parents of preemies can’t enjoy the ‘normal’ activities until they reach the stage where they feel the barriers can slip slightly. For me, this was when L started actively putting everything in his mouth. But until that milestone, I always had an array of hand sanitisers on my person and armed my pram with a ‘no touching sign’. Despite my best efforts, L still ended up in hospital twice before his first birthday with norovirus and the dreaded bronchiolitis.

#PrematurityIs needing tailored products and equipment to make your baby comfortable. We are very fortunate in the UK that we have fantastic provision to support our preemies in NICUs across the country. They are equipped with micro versions of the medical equipment preemies rely upon; teeny eye masks to protect delicate eyes from the jaundice lamps, miniscule cuffs to record blood pressure and even little cushioned pads to hold IV lines in place. But during L’s NICU stay in 2016, the smallest nappy available (size 0) wasn’t small enough. It nearly reached his chest and looked comical.

The nurses showed me some nifty nappy origami skills to make him as comfy as possible. However, nappies which are folded to size which can affect healthy development of a baby’s hips and legs. This year, Pampers developed its smallest nappy yet for preemies weighing less than 1.8lb (800g) – meaning nappy origami can be a skill of the past! These nappies aren’t available in the stores and Pampers committed to donate around 3 million nappies to hospitals across the UK and Ireland. 59 of the 206 neonatal units in the UK and Ireland have taken advantage of the donation, which equates to supplying over 18,285 preemies with properly fitting nappies.

#PrematurityIs wanting to give something back to those who helped you and your baby through your darkest days. All the preemie parents that I know have been involved in fundraising for both their Units and Bliss through attending and organising events. Regular readers of my blog will know that I organised several fundraising parties for our NICU during my maternity leave. I raised over £1000 and I feel incredibly guilty that I can’t continue these events now that I’ve returned to work. Hopefully I’ll carve out some time in the future. But for now, I can help from behind my computer screen.  This World Prematurity Day, Pampers will be joining in on a Bliss campaign, and that for every  social post shared on 17th November which includes what #PrematurityIs to you, and tagging @Pampers_UK on Twitter, they will donate £1 to Bliss. So please share what Prematurity means to you – your thoughts and a few clicks can help support premature babies and their families!

This post has been developed in conjunction with Pampers UK to raise awareness of World Prematurity Day 2017, Pampers Preemie Protection nappies and the social media campaign #PrematurityIs for Bliss, the charity for premature babies

The Perfect Preemie Nappy?

Pampers P3 nappy in palm of hand

I’ve always been a planner. I love a to-do list and I hate surprises. Everything in my life is planned to the finest detail – at least it was before I became a mum! Childbirth is meant to be spontaneous and I desperately tried to control whatever I could before the ‘big day’. I was feeling pretty smug that my hospital bag was all packed by 29 weeks, with a checklist detailing what should be packed at the last minute. I had stockpiled so many size 1 nappies that my mum had convinced me to move onto size 2s because apparently babies grow out of newborn nappies quickly….

Fast forward a week and my meticulous planning had paid off. Me and my hospital bag were checked into the Postnatal Ward and I had all my home comforts to hand. But my tiny 2lb baby L was in the NICU. I had never imagined for a second that I’d have a baby so small and early, let alone the practicalities of the right size nappies and clothes. Clothes could be forgone for a while; like most newborn preemies, L was only allowed to wear a nappy to receive phototherapy treatment for jaundice. But I was asked to supply nappies for him and was told to buy size 0 nappies. Size 0 was something I associated with supermodels, not babies.

So I sent my aunty off to the shops and I was thrilled when she came back with a packet of Pampers New Baby Micro (Size 0) nappies. There was something reassuring about seeing L in a recognised brand of nappies. A sense of normality, that he was just as real as any other baby in Pampers. He was just extra special and needed a teeny size. Despite having the smallest nappies available, he was swamped. At four days old, the micro nappy reached his armpits:

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At over a month old, the nappy still went past his belly button:

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With the help of NICU nurses, I learnt how to fold down L’s micro nappies to enable him to wear clothes and have his monitoring equipment in the right place. These nappies were the best product available for L at the time, but they didn’t fit him without some makeshift altering. Changing a nappy through an incubator window is no mean feat, especially when some nappy origami is required too! Any mistakes with positioning the nappy resulted in soaking bedsheets – NICU babies are always changed in their cots to avoid unnecessary fuss to the baby. I had to cradle a soaking L to my chest on a number of occasions whilst the nurses quickly hunted for clean sheets. Not ideal.

Luckily the ‘making-do’ with larger nappies in NICU will be a thing of the past for future preemie parents. I was delighted to be contacted by Pampers and asked to raise awareness of their new range of Preemie Protection nappies. Pampers has been busy in the background for the last 3 years, working with neonatal nurses and Bliss to design nappies for the smallest of premature babies.

The size 0 nappies are labelled for babies weighing 2lbs-5lbs – like most nappy sizes, it’s a pretty huge range. But unlike larger babies, preemies can be swamped by nappies that aren’t tailored for their special size. The new Pampers Preemie Protection range comes in three sizes: P1 for babies weighing less than 5lbs, P2 for less than 4lbs and P3 for babies under 1.8lb.

It must be hard for those who have never seen a 2lb baby to quite appreciate the size – so to compare, here is the new P3 nappy lined up against a Size 0 and L’s current size nappies Size 4 (he is in 3-6 month clothing). This doesn’t really do the preemie nappies justice – my mummy friends with term babies were always shocked at the teeny Size 0 nappies I carried around. The P3 can fit in the palm of my hand!

Comparison of Pampers nappies in sizes P3, 0 and 4.

Although L was born weighing 2lbs 10oz – larger than the sizing guidance for the P3 nappy – he would’ve easily fitted into it. Here’s a comparison of his first baby grow (for babies 3lb and under) against a size 0 nappy and a P3 nappy. The P3 is the perfect fit.

Pampers P3 and size 0 nappy in comparison to preemie 3lb vest

If you still can’t get your head around just how teeny the new P3 nappy actually is, I’ve modelled the nappy on our lovely My First Bliss Bear – ours is called Scuby! Our gorgeous Scuby is designed to represent the size of a 24 weeker. L had IUGR, so he was smaller than the average 30 weeker. He’s stolen my drink to show you how small he is too:

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To celebrate the launch, Pampers will be donating approximately 3 million Pampers Preemie Protection nappies to Neonatal Units across the UK, giving every premature baby born in the UK access to nappies specially designed for their needs. Pampers is also working closely with Bliss, a charity close to my heart, and will also be making a donation to the charity. Pampers is launching a fabulous social media campaign asking all parents to share photos on social media of their little ones with a clenched fist to celebrate the amazing fighting spirit that our preemie babies show every day. After another trip to A&E this weekend for us, I am constantly in awe of L’s fighting spirit. The video released by Pampers to coincide with the release of the P3 nappies has brought back so many memories of my view through the incubator window – you can watch the video here.

So whether you have a newborn preemie, a teeny-sized older baby, a preemie toddler or even a term baby, show your support by sharing your photos on social media with the hashtag #powerofbabies – Pampers will be donating £1 to Bliss for every picture shared using the hashtag!

Here’s an old snap of L with his clenched fist that I’ll be sharing on my Twitter and Facebook – don’t forget to set your post to public for Pampers to spot your post and donate a £1.

#powerofbabies

This post has been developed in conjunction with Pampers UK to raise awareness of the new Pampers Preemie Protection nappies and the social media campaign #powerofbabies for Bliss, the charity for premature babies.